Seamus' Wheelchair Van
My 3 sons have Duchenne Muscular Dystrophy which is a muscle degenerative disease.
My name is Seamus and I have 3 boys; Connor 12, Kian 10, and Finnegan 8. All 3 boys have Duchenne Muscular Dystrophy which is a muscle degenerative disease.
Connor my oldest has been on steroids since he was 5 and is on an exon-skipping drug. Connor already has cardiomyopathy which is scarring of his heart. We are trying to get my middle boy Kian in to get a cardiac MRI. While the steroids slowed his progression, they could not stop him from needing a power chair.
Boys with Duchenne, usually around 12 years of age, get their first powerchair. These powerchairs are usually around 450 lbs plus. While I'd love to be in a world where there is a chance the other two will not need a wheelchair, that is sadly not the case.
While we thank y'all for all the support and help in getting a full-size van that will accommodate 3 wheelchairs, we would also like to thank y'all for raising awareness for Duchenne Muscular Dystrophy and the suffering these boys go through.
After your gift to Seamus and his sons, you can also make a contribution to the Liberty Memes Foundation Wheelchair Van fund, here.